30/09/2025
4 photos of Juniper from September 2025, and two pictures from March 2025, right before her diagnosis of .
The last two pictures are from the week before she was admitted to hospital after 6 months of near-daily puking, and 2 years of insane meltdowns and strange neurological symptoms.
The protein she was eating was not being properly processed in her liver, was releasing ammonia in her body, and poisoning her brain and organs. Many kids with her disorder don’t get a diagnosis before they lose their life to this brutal illness.
Juniper lost most of her abilities and body functioning in April, ended up presenting with a seizure disorder due to the length of time her body had been processing high ammonia. We are extremely lucky she pulled through and has rehabilitated to the degree that she has.
If you work in health care or care to help children like her, please advocate for ammonia blood testing for any children showing neurological issues, especially if these issues are accompanied by puking. It is a simple and affordable test.
Our doctor initially told us she needed therapy and that her puking was likely anxiety related. I was so frustrated when I went to therapy sessions with her last fall. They were trying to get her to express her feelings and I could see her looking at me like- “seriously mom?”
This girl has been telling me her feelings and shown a high degree of emotional intelligence since she could talk. Nothing against therapy, but that really wasn’t it for her.
When she ate protein (which we didn’t know was the trigger) she would end up screaming for over 3 hours at a time, was extremely aggressive, could not sleep soundly, would have these episodes acting very strange, and was regularly throwing up.
I don’t feel comfy posting the worst videos of the state she was in when she landed in the ICU but you can see in the last two pictures how skinny and sickly she became.
Grateful for our girl and that she has come so far in the last few months. Sending love to all the other families of OTC kids out there.
We love you Juniper.