Paws for Elee

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Paws for Elee

Fundraiser for Elee's Seizure Alert Service Dog This puts her at greater risk for SUDEP and prolonged seizures that can cause permanent damage.

Our daughter Eleanor was diagnosed with refractory epilepsy at 9 months old after we found her unresponsive in her car seat. She spent the next 39 days inpatient at Children’s Healthcare of Atlanta (CHOA) and Medical University of SC (MUSC). Despite Elee being on 6 medications twice a day and a strict ketogenic diet for Epilepsy, she continues to have clustered seizures in her sleep. She has spent

close to half of her life battling seizures now yet remains so happy and resilient. The medical community does not expect Elee to grow out of her seizures so we are raising money for a seizure alert service dog. This dog will alert us when she is having a seizure so we can wake up and react quickly, giving Elee the best chance of full recovery. We will hopefully never find her in her crib or carseat not knowing how long she has been having seizures. If her seizures evolve to wake times, the dog will protect her by laying her down safely to protect from injury and provide comfort during and after episodes while alerting an adult. Seizure alert dogs cost $20,000 to the family. There is also a 2-2.5 year waiting list once we pay in full for the dog so this is just the beginning of our journey. We have chosen to work with a reputable company, 4 Paws for Ability, they were featured in the Netflix series Dogs in episode one. While we know this won’t cure Elee’s seizures, we hope it will give her the best chance and offer her comfort post seizures. We know this is ALOT of money for a dog but after speaking with a family who lost their daughter to SUDEP they encouraged us to not think twice. We have also spoken with two families that have seizure alert dogs and swear by their dog's ability to detect and alert for seizures. Paws for Elee 5K will be tentatively on November 4th at Saluda Shoals Park. There will be a 5k race and a 1 mile fun walk. Bring the whole family and your furry pup to run or cheer on the racers as we raise money and awareness for her service dog. More information to come as dates are
finalized. If you are interested in making a donation or sponsoring the 5k please reach out to me directly, Hilary Bassett, 803-260-7581. If you would like to donate to us through PayPal, https://www.paypal.com/pools/c/8V29VwM9DR or you can donate directly online go to https://4pawsforability.org/donate-to-4-paws but you must state the donation is for Eleanor Bassett. I can also mail checks to them. We will have a site that encompasses all of this soon. We thank God everyday for seizure free days and full recovery on other days. We have been so blessed with an amazing community and can never thank each of you enough for caring and loving our sweet Elee. God Bless You and Thank You,
Hilary and Erick Bassett

19/06/2024

Hey! I didn’t realize when I deleted the fb app it would disconnect from the Paws for Elee instagram page. That’s where I do daily updates on her care and progress! We heard that she will not be getting her dog until END of 2025 which is extremely disappointing but God is making sure she has the perfect dog at the perfect time.

She had a really rough May with sickness and seizures and had 9 inpatient days at Prisma but June has been good to us! She is truly SUPER ELEE!! We head back to MUSC tomorrow.

I will try to link the accounts again but head on over to instagram and follow her account for everyday Elee 🙂

29/02/2024

SILENT AUCTION POST FOR RARE DISEASE DAY.
THIS IS THE POST TO PLACE BIDS ON.

Today is Rare Disease Day, Feb 29th, the rarest day of all! Ring 14 Syndrome is wildly rare. Elee is the only person in SC and there are only 2 dozen or so in the USA ! Raising awareness of the condition helps people want to know more which drives research and potentially cures and treatments. Elee's condition is not treatable or curable at this time in history but I manage her symptoms and seizures. This leads to a lot of medications, therapies, and traveling! All of these things have really helped Elee progress further than was ever expected so the possibilities are endless!

To help offset these costs, we have 2 amazing tools donated by Carolina Honda to auction off to help with Elee's care expenses. This "silent fb auction" will only be 24 hours long on Feb 29th.

You will simply comment which one you would like to bid on and your bid amount. Pictures of Elee trying them out below haha
#1 https://powerequipment.honda.com/trimmers/models/hht35sltat

or

#2 https://powerequipment.honda.com/trimmers/models/hht35sukat?fbclid=IwAR3BQWOCKVMsUYMmINIJTMP2Sir0aBoOPIcoP7wushwzNxmugH9XpjtQJV8

At the end of the day, 11:59pm, bidding will be "closed" and the highest number wins! I will tag the winner and contact them.

If you DM or text me your bid amount, I will comment on the post with your initials and bid amount.

Delivery in the Greater Columbia, Myrtle Beach, Charleston, or Greenville area can be arranged but no shipping. Local pickup to West Columbia or Lexington is also an option.

Check, Cash, Venmo, or paypal

Please tag your friends that love yard work or share.

$This Thursday, leap day, is also Rare Disease Day! While epilepsy is not very rare, refractory epilepsy and Ring 14 Synd...$

27/02/2024

This Thursday, leap day, is also Rare Disease Day! While epilepsy is not very rare, refractory epilepsy and Ring 14 Syndrome are! Ring 14 Syndrome is VERY rare. Chances are, you will hopefully never meet someone else with Ring 14. To celebrate, we are doing a SPRING SILENT AUCTION!

Carolina Honda has donated two AMAZING powertools for me to auction off and use the money towards Elee's care ad medical traveling expenses. Now that spring is around the corner, what better time to get your yard in shape while benefitting our sweet Elee! Thank you Carolina Honda for donating these and loving sweet Elee!!

RULES: On Thursday, Feb 29th, I will have a separate post for the "silent auction". If you would like to "bid" on the powertool, you can comment or private message your bid amount and which one ( they will be labeled 1 and 2). Auction will be closed at midnight on Thursday and I will reach out to whoever wins!

*I cannot ship them, but I will meet anyone in the greater Columbia, Greenville, or Charleston area to drop them off. You can pay cash, check, paypal, or venmo!

https://powerequipment.honda.com/trimmers/models/hht35sltat and https://powerequipment.honda.com/trimmers/models/hht35sukat are the two items we will have for auction!

PLEASE SHARE to get the word out and see ya Thursday!

25/02/2024

Elee is officially a BIG cousin and she is so in love with Baby Wells! She’s OBSESSED with babies and taking care of her babies ( all 80 of them) so I can’t wait to see her love and care for him and grow up together! Congratulations and on a beautiful, happy, and healthy baby!

24/01/2024

Elee’s 2nd bday toy drive is still going on through the rest of the month! Two local businesses are also joining in donating new toys, books, games and more to Prisma Health Children’s Hospital-Midlands hospitalized children!

Blush Boutique has Ruby’s kissing booth this Saturday where you can donate items or simply donate to buy toys while enjoying Ruby and shopping at Blush!

Cola Stacks has chosen to make this the January giveback bracelet! 50% of bracelet proceeds go towards buying the gifts on the wishlist! They have a super cute toddler and kid version too.

Thank you all for helping other kids the way Elee has been helped. I am blown away by everyone’s continued generosity and hope to be able to do this toy drive annually in honor of Elee’s birthday!

All donations need to be new per hospital protocol. There is also an Amazon wishlist if you want to send something straight to the hospital but we would love to see you too 🙂
You can also drop off donations at All American Heating and Air until the end of the month.

https://prismahealthchildrens.org/ways-to-help/wish-list-columbia

09/01/2024

It has been a rough last week for sweet Elee. Last Wednesday, she was hospitalized from seizures, flu, and pneumonia. Having illnesses like that lowers her seizure threshold. Today, I woke up at 4:40AM to Elee having seizures but she recovered at home and did really well all day today! She is so resilient and strong!

This last hospital stay was shorter than normal but seemed harder. Child life services at Children’s Hospital was kind enough to stop by and give me a hand. They brought Elee some sweet toys she was able to keep and bring home. If you have kids, you know there is nothing like getting fun NEW toys. I remember one of Elee's first PICU stays, they gave her a tutu to wear and it was the most beautiful moments after seeing her only in a hospital gown for so long. The books, toys, and stickers have all made her hospital stays better.

Elee turns two this month and I would love to celebrate her bday by collecting new toys for the children's hospital in Columbia. You can order from their Amazon list to ship directly to the hospital, drop off gifts at our house, or All American Heating and Air. There is a wishlist and amazon link attached and in bio.

Thank you for celebrating with us and cheering on all the other warriors at Childrens!

https://prismahealthchildrens.org/ways-to-help/wish-list-columbia

09/01/2024

It has been a rough last week for sweet Elee. Last Wednesday, she was hospitalized from seizures, flu, and pneumonia. Having illnesses like that lowers her seizure threshold. Today, I woke up at 4:40AM to Elee having seizures but she recovered at home and did really well all day today! She is so resilient and strong!

This last hospital stay was shorter than normal but seemed harder. Child life services at Prisma Health Children’s Hospital-Midlands was kind enough to stop by and give me a hand. They brought Elee some sweet toys she was able to keep and bring home. If you have kids, you know there is nothing like getting fun NEW toys. I remember one of Elee's first PICU stays, they gave her a tutu to wear and it was the most beautiful moments after seeing her only in a hospital gown for so long. The books, toys, and stickers have all made her hospital stays better.

Elee turns two this month and I would love to celebrate her bday by collecting new toys for the children's hospital in Columbia. You can order from their Amazon list to ship directly to the hospital, drop off gifts at our house, or All American Heating and Air. There is a wishlist and amazon link attached.

Thank you for celebrating with us and cheering on all the other warriors at Childrens!

https://prismahealthchildrens.org/ways-to-help/wish-list-columbia

03/12/2023

Sharing traditions with Elee is so fun! Our new tradition this year is elf on the shelf and we are going to sleep under the tree tomorrow night once we decorate it ❤️🎄Loved our little weekend and so excited to decorate the tree with her. Christmas season with Elee is so fun and can’t wait to do all the fun holiday activities, especially in Denver! 🏔️❄️🏂

16/11/2023

THANK YOU to everyone who supported Elee in the the Paws for Elee 5k and 1 Mile Fun Run Nov 4th. It was a COLD morning but that didn't stop y'all from coming out and showing your support. Thank you to our incredible sponsors and thank you to all of the volunteers that helped bring the vision to fruition.

It is overwhelming to know how loved Elee is and how many people are praying for her each and everyday. God has big plans for Elee.

Thanks to YOU, we are able to give Elee the opportunity to have a seizure alert service dog and give Elee opportunities she wouldn't normally have.

Elee was not feeling well that day but she loved seeing all the dogs, especially the cute dressed up ones!!

There are still a few race shirts left at All American Heating and Air, if you registered and did not get a shirt, please stop by and grab one.

THANK YOU AGAIN and thank you to Willis Ranch Photography for donating her time and talents to capture this day!

16/11/2023

14/11/2023

Mondays are BUSY for Elee. She starts the day at 8am with speech therapy , goes to MMO until 12:30. Then, we usually have a random appointment which yesterday was with her dietician ( for keto diet) followed by physical therapy at 3 in West Columbia. Afterwards, we headed downtown for another appt at 4:45 and some Christmas jammie shopping. Elee is such a trooper. She giggles and laughs through it, greeting everyone with a big HEY! We decided to have a photo shoot between appts while she got some energy out. This feels like my first Thanksgiving with her and my first Christmas season since we didn’t get to do anything in the hospital last year. We are soaking it all in and enjoying every moment ( even these new crazy tantrums that I am weirdly grateful for because I know that means she’s a normal 2 year old)

11/11/2023

Thank you to all of our veterans that allow us to live in a country where we have access to life saving healthcare and emergency medicine and devices at home.I will never forget when Elee started ACTH injections at 9 months old and they told us it would cost $40k for her first round and that we were lucky because other countries don’t have access to that drug. We love this country and support and thank all of the veterans today and everyday. Check stories for ways to support the veterans at Dorn VA hospital this year by making sure they all get Christmas presents!! ( also I cannot believe how much Elee has grown since these photos!!)

09/11/2023

Medals that weren’t picked up and shirts that were ordered and not picked up are available for pickup at All American Heating and Air through Monday EOD. After Monday , anyone who registered can come get shirts. We don’t have a ton left and all were accounted for but I have no way to see who has picked up and who hasn’t.

We have extra dog bandanas too 🙂 thank y’all again!!!

Ps excuse my voice.. I lost my voice today but elee is feeling a lot better than yesterday so that’s what matters!

If you have a question, please call or text me 803-260-7581 - Hilary

08/11/2023

This morning I woke up and gave Elee her seizure meds at 6 and was drinking my coffee in bed when I noticed her having a seizure at 6:41. She continued to cluster for 20 min even after emergency meds were administered. Elee had 10+ seizures before they finally stopped and was postictal for about 30 min before she finally passed out and is still napping now.

Elee was at her seizure threshold so I have been on EXTRA alert. It has been exactly 40 days since her last seizure and she has never made it past that mark except when she first started keto and made it 52 days.

She is recovering at home but if she had another one I have to call 911.

PLEASE PRAY FOR ELEANOR.
Pray that she doesn’t experience regression from such a traumatic morning, pray that she doesn’t have anymore today and she can recover at home, pray that we can figure something out to help her get past 40 days, pray for a full recovery and seizure freedom. Pray a prayer of gratitude that I was with her, that we live in a country with access to emergency meds at home and can monitor her oxygen during the seizures and that the medicine works for her. Even through all of this, I’m so grateful for recovery and her resilience.

06/11/2023

Thank you so so much!!!

03/11/2023

Come on out and pick up your tshirts and race numbers before the race at Strictly Running🐾 I’ll be here until 6pm. If you miss it tonight, then stop by in the morning and grab them 🙂

ALL registered participants get a race number and a bag. If you chose a shirt size, then you will have a shirt!

We can’t wait to see everyone tomorrow bright and early!

$This is a great summary on refractory ( intractable) epilepsy! It’s hard to explain to people why Eleanor is on the keto...$

02/11/2023

This is a great summary on refractory ( intractable) epilepsy! It’s hard to explain to people why Eleanor is on the keto diet but it’s because medications alone weren’t working at all. She is currently maxed out on all dosages of her medications ( 4 seizure meds and 2 keto meds) and our plan is to wean her off one med at a time because it’s unclear if they help her as much as we think.

The keto diet has been a literal lifesaver for her!

01/11/2023

THIS SATURDAY y’all!! So so excited!!!!

Doing a Q&A on Instagram today to get all your questions answered about the Paws for Elee 5k and 1 Mile Fun Run at Saluda Shoals Park this Saturday Nov 4th!

It’s going to be a chilly amazing morning so come out and enjoy the beautiful fall weather with a free cup of coffee and a hot yummy breakfast!

28/10/2023

This little pup wants to see you next Saturday!! Shirt sizes were restocked for registration but once they are gone this time, they are gone!

Go register for next weekend and get ready to partyyyyy with Elee!

https://www.strictlyrunning.com/gpuilreg-8l.asp?uRaceId=4198

26/10/2023

Last minute vendor switch for shirts and so glad we did! Registration comes with a shirt so hurry and register while most of the sizes are still available! Sizes should update as people register based on what we ordered. also has their signature P4E shirts in store too!! THANK YOU to all of our amazing sponsors, the back of this shirt is filled with love and support from our community and we are so so grateful!! See everyone Sat Nov 4th 🐾

26/10/2023

We are excited about the shirts!! You have to register to get a shirt. Sizes that are listed when you register are what is left. Register quickly to get your preferred size 🙂
WE CANT WAIT TO SEE y’all NEXT WEEKEND!!!!! Don’t forget pickup for shirts and race packets will be at Strictly Running on Devine street Thursday and Friday next week in addition to a table set up day of starting at 6:45am at Saluda Shoals.

https://www.strictlyrunning.com/gpuilreg-8l.asp?uRaceId=4198

25/10/2023

So as a non fast runner, I wanted to make sure there were prizes for other fun ( made up) awards in addition to the amazing homemade medals for y’all fast people! (Promise they are cool… but also if not.. sorry, our dog Allman worked hard on these!)

You have to be present and registered to win!

Can’t believe it is NEXT WEEKEND!!

Register today so you get a shirt and entered in to win in fun stuff

WHAT OTHER MADE UP CATEGORIES CAN YOU THINK OF??

Thank you Outdoor Wood Furniture Inc. , Maxxitreats , Tubby Todd Bath Co. , 9Round Fitness Lexington

Lazy Creek Pet Food Center will have treats and water for the pups, Faithful Foods, Inc. and Tera's Merle Norman & Boutique are also donating some fun stuff.

21/10/2023

Our event starts tomorrow online and ends Monday night. Tomorrow, Sunday, from 1-3pm we will be at in Trenholm Plaza! You have to enter the code online or mention Paws for Elee in store. 20% of your purchase during this time will go towards Elee’s medical bills and treatments. THANK YOU!!!!

21/10/2023

TOMORROW ONLINE! The Kendra Scott giveback starts for Paws for Elee . We are so excited! You must enter the code online for Elee to get credit. ONLINE GIVEBACK ENDS MONDAY NIGHT.

SUNDAY in store from 1-3PM we will be there for the event and meeting everyone.

We would love for people to share one of these pictures so we can get the word out :) Thank you and happy shopping!

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http://www.pawsforelee.com/

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Hey! I didn’t realize when I deleted the fb app it would disconnect from the Paws for Elee instagram page. That’s where I do daily updates on her care and progress! We heard that she will not be getting her dog until END of 2025 which is extremely disappointing but God is making sure she has the perfect dog at the perfect time. She had a really rough May with sickness and seizures and had 9 inpatient days at Prisma but June has been good to us! She is truly SUPER ELEE!! We head back to MUSC tomorrow. I will try to link the accounts again but head on over to instagram and follow her account for everyday Elee 🙂

Medals that weren’t picked up and shirts that were ordered and not picked up are available for pickup at All American Heating and Air through Monday EOD. After Monday , anyone who registered can come get shirts. We don’t have a ton left and all were accounted for but I have no way to see who has picked up and who hasn’t. We have extra dog bandanas too 🙂 thank y’all again!!! Ps excuse my voice.. I lost my voice today but elee is feeling a lot better than yesterday so that’s what matters! If you have a question, please call or text me 803-260-7581 - Hilary

Come on out and pick up your tshirts and race numbers before the race at Strictly Running🐾 I’ll be here until 6pm. If you miss it tonight, then stop by in the morning and grab them 🙂 ALL registered participants get a race number and a bag. If you chose a shirt size, then you will have a shirt! We can’t wait to see everyone tomorrow bright and early!

So as a non fast runner, I wanted to make sure there were prizes for other fun ( made up) awards in addition to the amazing homemade medals for y’all fast people! (Promise they are cool… but also if not.. sorry, our dog Allman worked hard on these!) You have to be present and registered to win! Can’t believe it is NEXT WEEKEND!! Register today so you get a shirt and entered in to win in fun stuff WHAT OTHER MADE UP CATEGORIES CAN YOU THINK OF?? Thank you Outdoor Wood Furniture Inc. , Maxxitreats , Tubby Todd Bath Co. , 9Round Fitness Lexington Lazy Creek Pet Food Center will have treats and water for the pups, Faithful Foods, Inc. and Tera's Merle Norman & Boutique are also donating some fun stuff.

This article is so beautiful and so special! Thank you Lexington Life & Irmo Chapin Life Magazines! It took me several days to read the full article because I kept crying thinking about that first day but when I see how beautiful her life is, and how supportive our community is, I can’t help but smile!! We hope this can shed some light on Ring 14 Syndrome, service dogs, and help celebrate our sweet Elee by an amazing turnout Nov 4th at the Paws for Elee 5k and 1 Mile Fun Run!

BEST NEWS OF THE WEEK!! Thank YOU for giving us the chance to provide Elee with this life saving dog! Now, come celebrate with us at Paws for Elee 5k and 1 Mile Fun Run ! Any additional money raised will go towards her lifelong care and treatment. We are offering $10 off registration through Monday to celebrate!!!! Code: WeDidIt ( Video is chaotic and impromptu like the rest of our life 😂)

Excited to be in Lexington Life & Irmo Chapin Life Magazines this month!!! Next month they have an article on Elee and Ring 14! Lexington Life is also a Paws for Elee 5k and 1 Mile Fun Run sponsor! Thank you!!!!

Elee and the rest of the runners for Paws for Elee 5k and 1 Mile Fun Run like to stay hydrated! We are looking for a company or grocery store to donate water and sports drinks for race day! Please tag or reach out to us if you know someone who could supply cold beverages! Thank you!!

Craig Reagin Clothiers has some really fun custom color Paws for Elee shirts! You can buy in store or online! We love this local business and they have supported us throughout this entire journey! If you’re a Clemson fan, there’s a PERFECT shirt for you!!!

ELEE IS WALKING! And not only just walking.. she’s walking on beach sand!!! God is so good!! She has worked so hard in PT and I have pushed her everyday with purposeful play ( and turning our house into a PT gym). Thank you for all the prayers! We thank God for her walking and pray she can keep this milestone throughout her life! We are NOT putting this baby in a diagnosis box! Elee is gonna be taking home the Paws for Elee 5k and 1 Mile Fun Run medal!

We are getting SO CLOSE to our goal of $20k! I think we are around $18k but I only get updates from 4Paws for Ability every week or 2 (people who donated online on their website or sent checks to them show up on a dashboard). Thank you to everyone who has shared her page and donated! We can’t wait to see everyone in November at the 5K event!!

Paws for Elee Sponsorship

We have some pretty amazing sponsors so far AND we secured the domain pawsforelee.com so we can share it more easily. We have sponsorship levels from $5k to $300 and some businesses are even doing events to raise money for her (stay tuned!) Our platinum sponsor is All American Heating and Air . We hear that Baldie and Daisy are training to win the 5k so watch out. As of today: Our Gold sponsors are Parker Law, LLC , Wingard's Market, TC Squared, and Scott Properties of the Midlands, LLC Silver Sponsor is Phillip Technologies Bronze sponsors are barre3 Lake Murray, AAA Well Drilling, Inc., Lexington Life Magazine, & Turbeville Insurance Agency, Inc. - Columbia and Lexington We are still looking for music and entertainment for event day and there is still a few sponsorship spots open! THANK YOU to all of these businesses who love and support Elee and helping make Paws for Elee 5k and 1 Mile Fun Run a successful fundraiser.

Pass for Elee

Our dear friend Stephanie Helling Parker created this video for us to promote Eleanor’s Paws for Elee 5k and 1 Mile Fun Run and fundraising campaign! We want everyone to know more about epilepsy and hope we can help other families through their journey with epilepsy or other rare diseases like Ring 14. Thank you for being apart of Elee’s journey and loving her every step of the way! We love it and hope you do too! Please keep praying for our baby Elee. https://hilroyer.wixsite.com/pawsforelee

Elee is the most loving and sweet baby you’ve ever met. Sign up for the 5k or 1 mile fun run/walk to hear these giggles in person! We hope to see the whole family! In addition to race awards overall and by age class, there will be prize drawings, best dressed family, and best dressed dog! Elee will choose best dressed dog! Prices will go up each month leading up to the event. https://hilroyer.wixsite.com/pawsforelee Thank you to our current sponsors, All American Heating and Air, Parker Law, LLC, Wingard's Market, TC Squared, and barre3 Lake Murray

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