24/04/2023
So this little boy has been keeping me company with my long days stuck in the house, giving me lots of cuddles 🐾
I feel like it’s important to share some of my daily challenges on here, so people can see it’s not always a walk in the park.
I’ve been told by the doctor that I’m not allowed to drive until I have seen my consultant at the sleep clinic. Currently waiting for an appointment at the sleep clinic for narcolepsy. I’ve had all my bloods taken and they have come back clear, so my symptoms are pointing more towards something else.
The daily struggles of extreme fatigue and cataplexy are very debilitating. My possible cataplexy is where I get sudden muscular weakness triggered by strong emotions such as laughter, anger and surprise. I don’t know wether for definite I have this, however a lot of my symptoms are in line with narcolepsy. Daily tasks feel unmanageable some days. Now without being able to drive this has really made life difficult, although I know it’s the right thing for me and all. However I feel more isolated and like I’m loosing a part of my independence. I just hope I start feeling better soon, as the anxiety of these sleep attacks which I have no control over, are extremely debilitating and the simplest of jobs I can’t seem to face some days.