
10/09/2025
Bennie spent the night in the ER at the university and we hope to get an update from specialists soon. Yesterday, they did a slew of tests and found several things. Most importantly, he seems to have a foreign body in his system that appears to be a gastrointestinal tube left from a prior surgery. They are not sure if this alone is causing his issues, but it doesn’t look so easy to remove. They can’t remove it endoscopically because Bennie is way too tiny for their equipment. And because his health isn’t great, surgery isn’t an ideal option. They know there are other things going on as well. He is still anemic, but his white blood cell count has improved somewhat. They’ve ruled out Addison’s and a liver shunt and we are thrilled that they see no signs of another intussusception. There are still lots of other possibilities on the table including underlying endocrine or GI diseases but some of them also require an invasive surgical procedure for diagnosis. They are concerned about his stunted growth and his chronic diarrhea. But we were thrilled when the ER doctor called last night and said Bennie was alert and even eating a little. We promise to keep everyone updated as we learn more. We are humbled by the kind messages and the donations. We wouldn’t be able to help this sweet boy without you.
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